Conference Program: DATA SCIENCE AND RIGHT TO SCIENCE
May 18th - 19th, 2019
DAY ONE: SATURDAY, May 18th, 2019
16.30-17.00 Opening of the Conference
Mirjana Kujundžić Tiljak, Director, Andrija Štampar School of Public Health, University of Zagreb School of Medicine,
Stjepan Orešković, Global Bioethics Initiative, NY, Vice-President for Europe, Chairman of the Conference “Data Science and Right to Science”
Blaženka Divjak, Minister of Science and Education of the Republic of Croatia.
17.00 - 17.20 Effy Vayena, Professor, Department of Health Science and Technology, Institute of Translational Medicine, ETH Zurich. The Social Impact of Data Science: New Values for Guidance
17.20 - 17.40 Matthias Mann, Director, Max Planck Institute of Biochemistry, Martinsried, Munchen, Germany. Cutting Edge Research in Biotechnologies: Who Should Have Control Over Your Biological Data?
17.40 - 18.00 Jason Bobe, Director of Democratized Health Innovation at the Institute for Next Generation Healthcare at the Mount Sinai School of Medicine. Participant-Centered Research Design and “Equal Access” Data Sharing Practices: How Far We've Come?
18.00 - 18.20 Michael Chou. Harvard Medical School, Boston, USA. Non-anonymous Approach to Creating Public Genome and Health Data: What Was Learned From The Personal Genome Project
18.20 - 18.35 Coffe Break
18.35 – 18.55 Mildred Z. Solomon, President, and Chief Executive Officer, Hastings Center, New York. Scientific Data and Disbelief in Science
18.55 - 19-15 Stephan Kuster, Secretary-General, Science Europe, Bruxelles, Belgium. Defining The Rules for Scientific Information Access and Dissemination (TBC)
19.15 - 20.00 Round-Table Discussion. Data Science - A Great Opportunity To Improve Right to Science. Chair: Helle Porsdam, Center for Studies in Legal Culture, Faculty of Law, University of Copenhagen & Christine Mitchell, Harvard Medical School. Participants: Jason Bobe, Stephen Custer, Matthias Mann, Michael Chou, Mildred Z. Solomon, Effie Vayena
DAY TWO: SUNDAY, May 19th, 2019
BIG DATA INDUSTRY AND THE IDEA OF EQUAL ACCESS
9.15- 9.35. Lorenzo Pengo Healthcare Industry Director – Microsoft Central Eastern Europe HQ Digital Transformation in HealthCare: Health for All & Data For All? (TBC)
9.35 - 9.55. Nina Schwalbe, Chief Executive Officer, Spark Street Consulting and Mailman School of Public Health, Columbia University, New York. USA: Data Science for Global Public Good: A Private Sector Perspective.
9.55. - 10.15 Tin Oreskovic, Data Scientist, Chief Analytics Office, IBM Headquaters, New York, USA. Predictive Medicine And Ethics of Data Science: The Case of Measles Vaccination.
10.15. - 10.35 Joshua Gordon, Developer Advocate, Google TensorFlow; Associate in Computer Science, Columbia University, New York, USA. Public and Private Benefits of Open Source Software Development: Google Case.
10.35 – 10.55 Borut Petek, Gene Planet & Visiting Fellow at the Department of Government, Harvard University, Boston, USA. Preventive Genetic Testing: Between Business and Public Good?
10.55 - 11.15 Coffee Break
PEOPLE’S SCIENCE, CIVIL SOCIETY, AND LEGAL ENVIRONMENT FOR DATA SCIENCE
11.15- 11.35. Christine Mitchell, Executive Director, Center for Bioethics, Harvard Medical School, Boston, USA. What is and should be the status and normative weight of public engagement with science?
11.35.-11.55 Sebastian Porsdam Mann, The Oxford Uehiro Centre for Practical Ethics The University of Oxford, UK. How to Resolve the Tension Between The Medical Duties of Confidentiality and Beneficence?
11.55-12.15 Valerie Bradley, Founder, and President Emerita, Human Services Research Institute, Cambridge, USA. “Evidence-based policy-making: The case of mental disabilities”
12.15- 12.35 Max Schrems, Honorary Director, NoyB. GDPR, CNIL & Google: 50 Million Reasons to Be Conscious About Personal Data Usage for Ads Personalization.(TBC)
12.35 - 12.55. Roberto Andorno. School of Law & Institute of Biomedical Ethics, University of Zurich, Switzerland “Big Brain Data and the Right to Mental Privacy
12.55 – 13.40 Round Table Discussion: How to Harmonize Public and Private Interests in Big Data Management? Chair: Mildred Z. Solomon, Harvard Medical School. Participants: Nina Schwalbe, Sebastian Porsdam Mann, Borut Petek, Max Schrems, Valerie Bradley.
13.45 - 15.30 LUNCH BREAK
BIG DATA AND BIG RESPONSIBILITIES: PROFESSIONAL ASSOCIATIONS, PARLIAMENTS, GOVERNMENTS AND INTERNATIONAL ORGANIZATIONS
15.30 - 15.50. Dorjan Marušič, Chairman, Board of the Directors, American Accreditation Commission International (AACI), NC, USA. Developing Person-Centered Standards for Data Management in Healthcare Services: What Has Been Done Throughout the World?
15.50 – 16.10 Boris Brkljačić President, Board of Directors, European Society of Radiology, Vienna, Europe The Role of Professional Organizations in Promoting Quality Standard and Guidelines for Automated Detection of Abnormalities, Automated Quantification of Diseases, and Imaging–genomics.
16.10 - 16.30 MAIVE RUTE, Digital Economy, and Society, European Commission, DG NEAR. Multidisciplinary European Infrastructure On Big Data and Social Data Mining To Render Coherent Narratives In The Era of Post-Truth Society (TBC)
16.30 - 16.50 Closing Remarks: Christine Mitchell, Harvard School of Medicine, Boston, USA.: Scientists, Civil Society, Industry and Governments Working Together to promote Right to Science.